trinell05 wrote:I take care of my sister. It's funny that you mention a hug because her upper body strength is intense. Went to pick up her a few days ago and I swear she almost broke my ribs when she grabbed onto me, lol. She's had so many surgeries at this point, I just carry a notebook with me so when a doctor asks, I can just look it up.
Haha. I've had all of mine over the last fifteen years at the same hospital, so that's not an issue for me, but my file is a MONSTER. It's like six different folders taped together and held closed with a rubber band XD. It's like four inches thick.
trinell05 wrote:She used to walk, but something went wrong with her legs; they started growing past her hip, so they had to break her thigh bones to stop them from growing out of her skin.
That's awful, I'm sorry.
Trimss wrote:Would you mind if I ask you to explain what are the damage done by the "Cerebral Palsy" ?
It's the first time I read these words and having someone explaining it is so much easier than reading definitions on Wikipedia..
Well, for me personally...I was born 4 1/2 months premature [half baked, lol], and because I was so premature, I was born with grade 2 and 3 brain bleeds on both sides of my brain. That's how I ended up with CP. I was also born with this condition called retinopathy of prematurity, and in my case [this is gross] my eyes were growing backwards, and obviously that would've led to blindness, but somehow they reversed when I was an infant. Now my eyes are normal, I'm just nearsighted.
I have mild spastic CP, and the doctors claim it's actually in both of my legs, but it's only a problem for me in my lower left leg and foot. CP is a neurological disorder caused by brain damage, and it affects the muscles, usually the legs but also sometimes the arms and hands. It causes cramps, involuntary movements, shaking, loss of muscle control, etc. It's usually seen paired with other mental or learning disabilities. Basically, in my case, my left foot and ankle were permanently pointed in, nearly perpendicular to my right foot. I had a horrible time walking, obviously.
I had physical therapy when I was little, but it didn't do anything. They also tried treating it with botox injections and serial casting, which worked well at first, but got less and less affective as I got older. I didn't start walking until I was two. When I was twelve [I'm 17 now], the summer before eighth grade, I had a series of surgeries that released and cut a bunch of tendons in my foot and ankle, which straightened the foot but caused nerve damage, and then I had two more surgeries to fix the damage caused.Trinell could probably tell you about the more severe kind if she wants.
Amaranthine pretty much covered the medical definition of it. My sis also has epilepsy, so the shaking is magnified with her. We're still trying to control her seizures, but I guess because she's getting older, the complications are getting worse. I've honestly never done much research on CP, because I was always afraid of what I would find out about it. I don't really know what else to say about it. It's more of something you have to see to believe, because I've never seen two people with CP that were exactly the same.
